KIF11 is a rare genetic disorder. As a german non-profit association we are currently supporting
10 families all over Germany. The biggest benefit is to share experience between parents.
Our parent network helped us to realize that we are not alone, sharing the same fears and problems. After our first get-together in Germany, we felt like we have known each other for ages and it feels like having a small KIF11 family.
This feeling we would love to share with english speaking families.
>> SHARE YOUR EXPERIENCE WITH OTHER FAMILIES
>> DISCUSS DIFFERENT SYMPTOMS WITH SPECIALISTS
Key Speaker: Sahar Mansour, St. Georg‘s University London
– and more
>> LEARN MORE
about manual lymph treatment (for kids with lymphedema)
We also would like to welcome many specialists/doctors who would like to learn more about KIF11, share knowledge with other specialists and join discussions with families.
Please note that we are currently working on a more detailed agenda. The following overview is an draft only.
Registration will open beginning 2021
25th of September 2021
Official start: 9:30
Heathrow/Windsor Marriot Hotel
Participation fee is 25£ per adult.
Children up to 18 years free.
KIF11 Kids free.
– accommodation for one night
– fully English breakfast at the 27th of September
– Lunch/drinks and snacks during the event day
(26th of September)
Please transfer your participation fee until the
10th of July 2020 to the following bank account:
KIF11 Kids e.V.
IBAN: DE40 6025 0010 0015 1639 32
We do our very best to organize an event which is beneficial for everybody. The main costs will be paid by our non-profit organisation. Life is not plantar – especially with KIF11 kids. We totally understand this!
For our planning we need to charge you the participation fee after the 10th of July 2020.
You would like to stay longer?
It would be easier for you to arrive Friday and leave on Sunday or you would like to extend the trip for a family vacation around London or LEGOLAND?
Contact Jess Horne directly and she will extend your reservation:
Jess Horne, Event Planning Manager
MARRIOTT HOTELS | TRAVEL BRILLIANTLY
P 01753598181 Ext: 607 | F 01753 598 157 | Jess.Horne@marriotthotels.com
Special double room rate:
100£ per night (2 adults, up to 2 kids until 14 years)
Do you have questions?
Please contact me via phone, WhatsApp or email. I am happy to answer your questions: